Well, Emily did great during her tests this morning. Her GI doctor does NOT think that she has Crohn's Disease!!!!! That is a huge praise for us! For those of you that don't know, my dad had Crohns and passed away almost 4 years ago, so that potential diagnosis wasn't sitting too well with us.
They did find something unusual- she has a very strange rash on her feet that has been left unexplained for weeks now- well, that same rash is in her intestines (a very large part). So, they are now going to biopsy the rash on her feet to see if it is going to match the results from the biopsies taken this morning. The feel that this all has something to do with an auto immune dificiency, but they are still trying to put all of the pieces together. They are going to continue feeding her through the tubes and will hopefully continue to bring her energy up.
She was full of questions this afternoon which was great! Before, she was very quiet and wouldn't ask questions or talk to us about any of what is going on. We know know that she was just very scared of the thought of having Crohns....so, even though we still don't know exactly what it is, we are one step closer and are thankful for that.
Thanks to all of you who have called, e-mail Emily through the Levines website, and e-mailed the family. We all appreciate it very much.
We know that Emily will be in the hospital at least until the end of the week, but don't know anything passed that.
Thanks again and I will continue to keep you posted!